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Patient reported speech outcome after treatment for head and neck cancer

 

Background

A Speech Handicap Index (SHI) questionnaire with 30-items on speech problems in daily life and a question on overall speech quality was developed to assess speech problems in patients and validated in a sample of 92 patients with cancer of the oral cavity or pharynx and a sample of 110 healthy subjects.

 

Methods

All subjects completed the the SHI and the EORTC H&N35 questionnaire at a single point in time. A randomly selected subset of patients (n = 29) completed the SHI on a second occasion approximately 3 months later for purposes of assessing test-retest reliability.

 

Results

Factor analysis identified two well-defined subscales within the SHI, one assessing speech function and the other psychosocial functioning related to speech. The internal consistency and test-retest reliability of the SHI was high (> 0.90 and 0.85 respectively). The construct (“known groups”) validity of the SHI was evidenced by its ability to distinguish clearly between patient subgroups formed on the basis of tumor grade. A SHI cut-off score of 6 points was defined to identify patients with speech problems. A difference score of 12 points or more is proposed as a relevant difference score for multiple group study designs.

 

Conclusions

The results of this initial psychometric study indicate that the SHI is a reliable and valid questionnaire for assessing speech problems in daily life. Additional research is needed to evaluate the responsiveness of the questionnaire to changes in speech-related problems over time.

 

The SHI is now used in clinical practice (in OncoQuest) and in other research projects. For instance, in a study among  88 patients treated more than 3 months earlier for laryngeal cancer, correlation between VHI (Voice Handicap Index) and SHI scores was high (r=.98). ROC analyses revealed equal values as compared to patients with oral or oropharyngeal cancer for the SHI (cut off 6: sensitivity 97%, specificity 87%). Speech was significantly associated with quality of life (r=.43) and distress (r=.50). In laryngeal cancer patients.

 

Funding

VUmc, department of Otolaryngology - Head & Neck Surgery.

 

Staff
R.N.P.M. Rinkel, MD, ENT-specialist, laryngologist, dpt. Otolaryngology-Head&Neck Surgery, VUmc
Prof I.M. Verdonck-de Leeuw, PhD, Psychologist, Speech and Language Therapist, Linguïst, dpt. Otolaryngology-Head&Neck Surgery, VUmc.
prof. N.K Aaronson, PhD MD, Head dpt. psychosocial research, The Netherlands Cancer Institute
Prof C.R. Leemans, PhD MD, Head & Neck Surgeon, ENT-specialist, dpt. Otolaryngology-Head&Neck Surgery, VUmc.

 

Questions?
For questions, please contact:
Rico N.P.M. Rinkel, MD, ENT-specialist, laryngologist
Email: s.biemans@vumc.nl

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News flashes

 

Treatment of psychological distress in patients with head and neck or lung cancer cost-effective.
A recent study of PhD-student Femke Jansen and colleagues, recently published in the Journal of Clinical Oncology

 

PhD thesis Nadine Köhle

December 15, 2016 Nadine Köhle defended her PhD thesis "Hold on, for each other. Supporting partners of cancer patients via eHealth and positive psychology". 

 

PhD thesis Anne-Marie Krebber

December 2, 2016 Anne-Marie Krebber defended her PhD thesis "Stepped care targeting psychological distress in head and neck cancer and lung cancer patients".

 

PhD thesis Nadia van der Spek

September 7, 2016, Nadia van der Spek defended her PhD thesis "Meaning-centered group psychotherapy for cancer survivors: development, efficacy, and cost-utility". 

 

EORTC QLG Newsletter Spring 2016
The EORTC QLG  Spring Meeting took place on April 20th and 21th 2016 in Oslo. The Spring newsletter of the EORTC QLG is now available. 

PhD thesis Ingrid Cnossen

April 12, 2016, Ingrid Cnossen defended her PhD thesis entiteld “Self-management Supporting Rehabilitation in Head and Neck Cancer Patients”. 

 

VU/VUmc and Red-kite sign agreement for the provision of the Oncokompas in healthcare.

The VU University Amsterdam and VUmc Cancer Center Amsterdam work with Red-kite, distributor of software for hospitals in Netherlands. (November 3, 2015)

 

PhD thesis Christine van Gogh

December 4, 2015, Christine van Gogh defended her PhD thesis entiteld “Functional outcome of early glottic cancer”. 

Book presentation

On June 15th, 2015, Irma Verdonck presented the book "In Tune Without Cords" (in Dutch: VerderZonderStembanden) to Rob Burdorf, the president of the patient society for patients after laryngectomy.

 

PhD thesis Florien Boele

May 11 Florien Boele defended her PhD thesis, entitled "Towards improving health-related quality of life in glioma patients and their informal caregvers".

 

PhD thesis Trille Kristina Kjaer

May 8, Trille Kjaer will defend her PhD thesis entitled "Late effects after treatment of head and neck cancer and use of patient reported outcomes in clinical practice." Irma Verdonck is member of the committee.

 

Niels Stensen Fellowship
Florien Boele has received a Niels Stensen Fellowship. This is a scholarship that is awarded annually to a number of outstanding researchers who have recently obtained their PhD degree, to gain working experience abroad. Florien Boele will go to Pittsburgh (United States) and Edinburgh (Scotland) in 2015 and 2016.
 

Key paper

The publication “Prevalence of depression in cancer patients: a meta-analysis of diagnostic interviews and self-report instruments” of A.M.H. Krebber et.al is chosen by the Editors as one of the key papers in Psycho-oncology, (issue June 2014).

 

On April 10th, 2014, the first edition of the Value Based Healthcare Prize took place. The prize for the most exceptional initiative in collaborations went to Jippa, a collaborative by VUmc, CZ, Radboud UMC and Tilburg University.

 

In November 2013 the NVPO organised the International Congress "Innovation in Psycho-Oncology". The researchgroup held several presentations and posters.

 

Interested in oncological care chain? Come 2 October 2013 to the 3rd MuON symposium in hospital Gelderse Vallei. Keynote speaker Michel van Schaik (Director Rabobank) about Innovation in the care!

 

12 april 2013: KWF Kankerbestrijding / Alpe d’HuZes has granted the research proposal Netherlands Quality of life and Biomedical Cohort Studies in Cancer (NET-QUBIC).

Marieke de Bruijn will defend her PhD thesis on 10 juni 2013 at 15.45 pm.

Support our bicycle team for Alpe d'HuZes 2013!

On 6 June 2013 our team living together with cancer will cycle the Alpe d'HuZes! This in the fight against cancer. At this moment there is already more than 1500 euro donated. Do you support us too?

 

The 15th World Congress of Psycho-Oncology and Psychosocial Academy will be held in Rotterdam, 4-8 November 2013. www.ipos-society.org/ipos2013/.

 

29 January 2013. Pink Ribbon has granted a project to develop and evaluate an online training for cancer patients with insomnia (Annemieke van Straten), and a project to develop and evaluate a breast cancer module for the OncoKompas (Nelly van Uden).

 

Charity Symposium "Living with cancer"

On December 19, 2012 there will be a Symposium ''Living with Cancer''. This is a charity symposium on meaning centered psychotherapy for cancer patients. Read more about it at the tab News at the left.

 

15 November 2012: Hoe?Zo! Radio interview with Irma Verdonck on stress and cancer.

 

October 2012: Interview with Irma Verdonck in Psychologie Magazine.

 

September 9, 2012. Interview Hans van Willigenburg with Irma Verdonck on Radio 5.

 

August 2012. Five students finish their MSc thesis and graduate as MSc in Clinical PSychology.

 

June 28-30, 2012: International symposium on Supportive Care in Cancer (MASCC ISOO) at New York. Kevin Yap and Irma Verdonck organise a workshop on e-health and supportive care.

 

Record for Alpe d'HuZes 2012. The sponsor action Alpe d'HuZes (6 and 7 June) 2012 has already yielded the record amount of 28.5 million euros.

 

June 6-8, 2012: Our research group contributes to Alpe d'HuZes as volunteers.

 

April 20, 2012: Nelly van Uden will give a presentation about OncoKompas at a conference about  ICT in health care in Barcelona.

 

March 16, 2012: NVPO congress in Utrecht, we contribute with 2 oral and 2 poster presentations and a workshop.

 

January 1, 2012: The project POLARIS project has officially started.

 

December 22, 2011: Radio program DeGids.fm, Felix Meurders interviews Corien Eeltink on sexuality and cancer. 

 

November 2, 2011: KWF / Alpe d'HuZes funds a grant for the development and evaluation of an online intervention for informal caregivers of cancer patients.

 

October 30, 2011 In the national television program "Gesprek op 2", Daphne Bunskoek interviewed Irma Verdonck on living with cancer.

 

October 28, 2011: www.oncokompas.nl is online!

 

October 23, 2011: Alpe d'HuZes hands over more than 20 million euros to the Dutch Cancer Society!

 

 

Team work

Our research projects are embedded in the two largest research institutes of VU University in Amsterdam: VUmc CCA-VICI (Cancer Center Amsterdam) www.vumc.nl/afdelingen/CCA-V-ICI/ and EMGO+ (Institute for Health and Care Research emgo.nl

We work closely with patients and their caregivers and with researchers and physicians at VU University and VU University Medical Center in Amsterdam and other research institutes and hospitals in the Netherlands and worldwide. Team work is crucial  improving research and translating results into clinical practice.

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